The conversation you have with your family about gMG is likely to be one of the most important discussions you'll have following your diagnosis.
It's not just a routine conversation, it's a pivotal moment that establishes the foundation for the support, understanding and empathy that will be crucial as you face the challenges of gMG together.
It’s essential to approach this conversation with compassion and empathy. Recognise that the news may be challenging for your family to absorb. It is also important to discus show gMG might impact your family.
It's not just a routine conversation, it's a pivotal moment that establishes the foundation for the support, understanding and empathy that will be crucial as you face the challenges of gMG together.
It’s essential to approach this conversation with compassion and empathy. Recognise that the news may be challenging for your family to absorb. It is also important to discus show gMG might impact your family.
For example, will family members need to adapt their daily activities or work routine, will they need to accompany you to your medical appointments, will your home need adapting according to your physical abilities and will your family need to spend more time looking after you?
In addition to addressing the practical aspects of your gMG, it’s also important to discuss the emotional challenges that may arise. Sharing your own fears and anxieties can help your family better understand your emotional state and allow them to provide the necessary emotional support.
Finally, reassurance is also key, emphasise that with medical support and treatment, gMG is a manageable condition.
In addition to addressing the practical aspects of your gMG, it’s also important to discuss the emotional challenges that may arise. Sharing your own fears and anxieties can help your family better understand your emotional state and allow them to provide the necessary emotional support.
Finally, reassurance is also key, emphasise that with medical support and treatment, gMG is a manageable condition.
gMG can result in a medical emergency. Family members should be aware of what to do if you experience a myasthenic crisis, see In an emergency for more information.
- Uhlenbusch N, Swaydan J, Höller A, et al. Affective and anxiety disorders in patients with different rare chronic diseases: a systematic review and meta-analysis. Psychol Med 2021:51:2731–41.
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The information on this website is provided by Alexion, AstraZeneca Rare Disease for educational purposes only and is for people prescribed an Alexion medicine. It is not intended nor implied to be a substitute for professional medical advice. If you have any questions about your medical condition, please talk to your doctor or other health care provider.
Reporting of Side Effects
If you get any side effects, talk to your doctor, pharmacist or nurse. This includes any possible side effects not listed in the patient leaflet. You can also report side effects directly via the national reporting system [Country to add their Regulatory Authority website]. Side effects should also be reported to Alexion by contacting https://contactazmedical.astrazeneca.com. By reporting side effects, you can help provide information on the safety of this medicine.
Reporting of Side Effects
If you get any side effects, talk to your doctor, pharmacist or nurse. This includes any possible side effects not listed in the patient leaflet. You can also report side effects directly via the national reporting system [Country to add their Regulatory Authority website]. Side effects should also be reported to Alexion by contacting https://contactazmedical.astrazeneca.com. By reporting side effects, you can help provide information on the safety of this medicine.