Throughout our lives, various individual, social and structural factors either interact to safeguard or compromise our mental wellbeing.1 Our mental health needs are dynamic, fluctuating over time, and the same individual may cope differently at various points in their life.1
For many people, adapting to life with gMG is an ongoing journey rather than a singular event. It may sometimes fall into the background, only to resurface during different transitions, such as receiving a diagnosis, initiating treatment, or entering new life phases.2,3
For many people, adapting to life with gMG is an ongoing journey rather than a singular event. It may sometimes fall into the background, only to resurface during different transitions, such as receiving a diagnosis, initiating treatment, or entering new life phases.2,3
The mental health support needed by any one person exists on a spectrum, ranging from low to high.1 Though each person’s response to the same risk factors may differ, it has been well-established that the mental wellbeing of individuals living with rare diseases is substantially impacted.1
That’s why it’s important for you to be able to recognise any mental health concerns and seek help early in order to ensure you have the support you need.
That’s why it’s important for you to be able to recognise any mental health concerns and seek help early in order to ensure you have the support you need.
- World Health Organization. Promoting mental health: concepts, emerging evidence, practice. 2005. Available at: https://iris.who.int/bitstream/handle/10665/43286/9241562943_eng.pdf?sequence=1.
- Llubes-Arrià L, Sanromà-Ortíz M, Torné-Ruiz A, Carillo-Álvarez E, García-Expósito J, Roca J. Emotional experience of the diagnostic process of a rare disease and the perception of support systems: A scoping review. J Clin Nurs. 2022;31(1-2):20-31.
- Uhlenbusch N, Swaydan J, Höller A, et al. Affective and anxiety disorders in patients with different rare chronic diseases: a systematic review and meta-analysis. Psychol Med 2021:51:2731–41.
DISCUSSING HOW gMG AFFECTS YOU
Talk to your family, friends or co-workers about your own specific symptoms, and how they affect you personally. Because the symptoms...
HOW TO TACKLE DISCUSSIONS WITH FAMILY
The conversation you have with your family about gMG is likely to be one of the most important discussions you'll have following your diagnosis...
LONG-TERM MONITORING OF YOUR MENTAL HEALTH
If you do consult a mental health professional, they may suggest periodic follow-up appointments to track your progress, evaluate the....
The information on this website is provided by Alexion, AstraZeneca Rare Disease for educational purposes only and is for people prescribed an Alexion medicine. It is not intended nor implied to be a substitute for professional medical advice. If you have any questions about your medical condition, please talk to your doctor or other health care provider.
Reporting of Side Effects
If you get any side effects, talk to your doctor, pharmacist or nurse. This includes any possible side effects not listed in the patient leaflet. You can also report side effects directly via the national reporting system [Country to add their Regulatory Authority website]. Side effects should also be reported to Alexion by contacting https://contactazmedical.astrazeneca.com. By reporting side effects, you can help provide information on the safety of this medicine.
Reporting of Side Effects
If you get any side effects, talk to your doctor, pharmacist or nurse. This includes any possible side effects not listed in the patient leaflet. You can also report side effects directly via the national reporting system [Country to add their Regulatory Authority website]. Side effects should also be reported to Alexion by contacting https://contactazmedical.astrazeneca.com. By reporting side effects, you can help provide information on the safety of this medicine.